And finally, keep planning. There are two kinds of planning you need to do.
You need to think about the possible progression of your M S, and then envisage ways of coping, or managing, or living with these progressions. Don’t leave things till they become emergencies. If you end up being rushed into hospital, or put in a Home, you forfeit your control
Think about stair-lifts, downstairs bathrooms, access to the house and garden. At least think about them, before you have to. The same is true of Homes, if you think you might need one in the medium future. Find out what the Homes are really like, by doing some voluntary work in them.
Use a manual wheelchair occasionally so you don’t feel a freak when you’re in one. Plan ahead. Make your practical life as future-proof as you can. If you have to, move house – it will be even harder to do this later.
The second type of planning you need to do, is planning your emotional life, now. Plan to do things, use public transport (which forces you to plan). Plan your days, and plan your movements, like a rock climber. It is that split moment of inattention that results in the fall and the accident.
Above all, know yourself. Know when you are tired, and know when you’re having a good day. Learn how your body spends its allocation of energy. If I had to reduce all these posts to only one piece of advice, it would be to think of yourself as an athlete, which, in a sense, you are, and treat yourself accordingly. Sleep well, eat healthy food, train every day and keep fit.
It is still possible to win the race.